Providing equitable aging research and care faces a major barrier: minorities that are disproportionately impacted by dementia are greatly underrepresented. Data shows that Black and African American individuals are twice as a likely to develop dementia. Hispanic and Latino populations are one and a half times as likely. At the core of this issue is what researchers call social and structural determinants of health (SSDOH). These are the ways our health is impacted by social factors in our environment, poverty, racism, and limited access to healthy food. Outreach is the central way research centers, such as those at the Penn Memory Center, attempt to address these disparities. Outreach coordinators attempt to establish ties with local communities, providing educational talks on aging as well encouraging members of the community to sign up for clinical trials. While important, much more is needed in order to overcome these disparities.

On this episode of the Age of Aging, we explore the disproportionality of dementia’s impact on underrepresented groups and how outreach efforts seek to address that.

We’ll first learn how PMC Outreach Coordinator, Morgann Adams works to establish ties with black and African American communities in Philadelphia. We will then hear from Dr. Eddie Lee about how social factors physically change a person’s brain as they age. Finally, Reverend Leroy Miles discusses the relationship between Enon Tabernacle Church and the Penn Memory Center and the aging needs of his community.

Resources

• Learn more about aging disparities in underrepresented groups.

• More on community outreach at PMC

• More information on the Aging Brain Cohort Dedicated to Diversity (ABCD2) Study.

• Read about the work of the Dr. Eddie Lee’s lab.

• Visit Enon Tabernacle Baptist Church’s website

Special thanks to Morgann Adams, Eddie Lee, MD, PhD, and Reverend Leroy Miles for being a part of this episode.

The Age of Aging is a Penn Memory Center production hosted by Editorial Director Terrence Casey and Producer Jake Johnson, in partnership with the Penn FTD Center, the Penn Institute on Aging, and UPenn’s Alzheimer’s Disease Research Center. Contributors include Nicolette Calcavecchia, Dalia Elsaid, Marie Ingegneri, Jason Karlawish, Emily Largent, Meg McCarthy, and Meaghan Sharp.

This November, millions of Americans will head to the polls for the 2024 presidential election. But while the right to vote is essential to our democracy, unfortunately, the process of voting can present unique challenges for individuals with disabilities like dementia, often requiring outside assistance. If you’re a caregiver, how much can you help someone vote? What kind of assistance is available to those with dementia?

On episode 3 of the Age of Aging, we look at voting, and what the process means for individuals with dementia and their caregivers.

We begin by talking with Dr. Jason Karlawish who discusses the legal framework around voting capacity and shares his perspective on how to define a person’s capacity to vote. Then, voting advocate TJ DeLuca provides some important information on assisting the voting process for individuals with disabilities. Finally, we’ll hear from a voter who was falsely told he could not help his wife with dementia vote in 2020.

Resources

• Pennsylvania Designated Agent Form

• Check out the American Bar Association and Penn Memory Center’s guide to voting with cognitive impairment

• More on Doe v. Rowe case

• Read Dr. Karlawish’s study on voting in long-term care facilities

• Visit disabilityrightspa.org or call 1-800-692-7443 to learn your rights

Special thanks to Jason Karlawish, MD, TJ DeLuca, and John Moore for being a part of this episode.

The Age of Aging is a Penn Memory Center production hosted by Editorial Director Terrence Casey and Producer Jake Johnson, in partnership with the Penn FTD Center, the Penn Institute on Aging, and UPenn’s Alzheimer’s Disease Research Center. Contributors include Nicolette Calcavecchia, Dalia Elsaid, Marie Ingegneri, Jason Karlawish, Emily Largent, Meg McCarthy, and Meaghan Sharp.

An Alzheimer's doctor goes to the opera...This isn't the start of a bad joke; it's the result of a collaboration between the Penn Memory Center and leaders of Philadelphia's arts community. The first of its kind at PMC, the Arts on the Mind Festival explored the intersection of the mind and art over a two-month event span. Music, literature, visual art, and film were all featured as mediums to better understand the importance of art in our lives and even how art can be used to help those with cognitive impairment.

On episode 2 of the Age of Aging’s second season, we take a look at the Arts on the Mind Festival to understand just how essential the arts and creativity are for us as aging humans.

We start at the first event of Arts on the Mind at the Franklin Institute for a discussion between Dr. Jason Karlawish and special guest Anne Basting on the mind and creativity. Then, we’ll hear from the festival’s creators on how their vision evolved over time and why it ultimately became what it did. Finally, we’ll examine the deeper connection between art and the brain, asking: Could creative expression be more than just a source of joy? Could it be a therapeutic tool for those with cognitive challenges?

Resources

• Learn more about the Arts on the Mind Festival

• Check out more programs at the Penn Memory Center

• Visit Anne Basting’s website

• Learn more about “A Song by Mahler”

• Collaborators include: The Philadelphia Chamber Music Society, The Penn Memory Center, The Franklin Insitute, The Philadelphia Film Society, the Free Library, and ARTZ Philadelphia

Special thanks to Jayatri Das, PhD, Jason Karlawish, MD, Anne Basting, PhD, Miles Cohen, Judy Freedman, Allen Freedman, and Mark Neikrug for being a part of this episode.

The Age of Aging is a Penn Memory Center production hosted by Editorial Director Terrence Casey and Producer Jake Johnson, in partnership with the Penn FTD Center, the Penn Institute on Aging, and UPenn’s Alzheimer’s Disease Research Center. Contributors include Nicolette Calcavecchia, Dalia Elsaid, Marie Ingegneri, Jason Karlawish, Emily Largent, Meg McCarthy, and Meaghan Sharp.