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Autistic POV

Autistic POV

著者: Barbara Graver
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My late-diagnosed autism journey with autistic writer writer Barbara Graver.© 2024 Moonflower Media Co., All rights reserved. アート 文学史・文学批評 社会科学
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  • Monotropism as a Theory of Autism (into) EP 14
    2025/07/05
    This is the intro to a new series where I’ll be exploring a theory of autism called monotropism from the perspective of an absolute beginner. I found out about the monotropic model of autism a few days ago and have just begun to learn about it. I don't know a lot as of yet (aside from my own lived experience as a person who definitely is monotropic) but I am intrigued and want to learn more and thought others might want to learn along with me. If you like my content, please follow the podcast! For more on monotropism, please visit monotropism.org and / or follow the podcast and we explore this topic. Check out my blog Writing On The Spectrum here: BarbaraGraver.substack.com or here: WritingOnTheSpectrum.com Episode 14 Transcript Full transcript below. To access closed captioning (or the transcript is cut off), please listen via the podbean app or at AutisticPOV.com (https://www.autisticpov.com/). Welcome to Autistic POV. My name is Barbara Graver and I started this podcast to share a bit of my journey as a late diagnosed autistic. Hi everybody, this is Barbara Graver. Welcome to today's episode of Autistic POV. Today we're going to be talking about an alternate theory of autism that's called monotropism. 0:32 And I found out about this theory just recently, actually, on Substack. Someone I follow on Substack, and now I can't remember who had mentioned it, that they were interested in it. And it was the first I'd heard of it. So I found the website, which is monotropism.org, and I began to read about it. 0:53 And it really, really resonated with me. And basically the idea, and I'm going to read from the website, the idea is that monotropic minds have their attention pulled very strongly towards a small number of interests. I'm paraphrasing. at a given time. And this leaves fewer resources for other processes. So in other words, 1:18 you are so focused on your special interests that it affects the way you function in other arenas, which is so true of me. Very, very true of me. Very true of other people I know who are autistic too. And the Creators of this theory believe that this idea of monotropism can explain directly 1:42 or indirectly all of the features commonly associated with autism. And it's interesting. To me, it's interesting because I had been actually thinking about this on my own. I'd been thinking a lot ever since I charted my own autistic traits, which I talk about in the previous episode, actually a couple times in a couple previous episodes. 2:08 Ever since I had done that, I'd been interested in this idea that hyper focus, special interests, intense attention is really, really key in the way autism presents in me. And this was when I rated my autistic traits. I did a chart kind of loosely adapted on the DSM-5. 2:32 And when I rated my traits, hyper focus was the most prominent trait I had. I actually gave that a 10, which is maybe I could have gone with nine, but I gave that a 10. Whereas my other traits, I had a few other traits that were seven and eights and then others that were quite low. 2:52 So the idea of monotropism really interested me because that's my major trait. Now there may be other people who feel their major trait is not described by hyperfocus who might not feel this kind of resonance with the idea that I do. But to me, it made a lot of sense. 3:10 And they do say that you don't need to accept it as a general theory of autism, that it could still be useful for you. So the more I thought about it, the more I thought that I think they have a point. And the creators of the theory are Dina Murray, who is deceased, and Wynne Lawson. 3:28 These are both PhDs. I think Dina Murray was... specialized in language, where Winn-Lawson, I believe, has a PhD in psychology. They both have academic credentials, and I know that Winn-Lawson, at least, is definitely autistic. So this kind of goes with the idea of us helping to determine the paradigm regarding autism. 3:56 So I thought about some of my other traits that my issues with communication. Also, I could connect the issues I have with communication too. And other things, such pattern recognition, I think also can be related to focus or attention. Sensitivities to me seem like a little more of a stretch. I felt 4:22 that you could say that people have sensitivities because they're focused on certain things, certain tactile things. I'm not sure that that always explains it, but I do think hyposensitivities are very much explained by monotropism. In other words, if you're working at something, like if you're working or researching regarding one of your special interests, you may not notice, 4:50 um, You may not notice if you have to go to the bathroom. You may not notice if you're hungry or thirsty. You may just kind of block everything out. And I do this. I'll even, if I'm writing or doing something special interest related, someone can come into my study and actually start to talk to me. 5:09 And I'll stop what I'm doing ...
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    13 分
  • My Autistic Traits: Difference Not Deficit! EP 13
    2025/06/24
    In the episode I share how I rated my own autistic traits on a 1-10 scale and how I'm learning to think in terms of "difference, not deficit." Check out the blog post on charting my autistic traits here: https://barbaragraver.substack.com/p/charting-my-autistic-traits Check out my blog Writing On The Spectrum here: BarbaraGraver.substack.com If you like my content, please follow the podcast! Full transcript below. If you need closed captioning (or the transcript is cut off), please listen via the podbean app or at AutisticPOV.com (https://www.autisticpov.com/). Episode 13 Transcript Welcome to Autistic POV. My name is Barbara Graver and I started this podcast to share a bit of my journey as a late diagnosed autistic. Hi everybody, this is Barbara Graver. Thank you for joining me today on Autistic POV. Today I wanted to talk a little bit about autistic characteristics and I'm going to 0:32 be doing this through the lens of the characteristics I've identified in myself. I just try to steer away from speaking for other people because there's such a a wide range of experience and abilities in autism that I feel whenever I try to speak for anyone else, I always feel like I'm getting it wrong. 0:57 So this is purely from my perspective. The disclaimer is these traits are not necessarily going to present the way they aren't going to present the same way across the spectrum as they present in me because we're all different. So I talked a little bit during my autism and psychic ability series, 1:19 I talked a little bit about the idea of a linear spectrum, a spectrum from high to low, as is suggested by the DSM-5. And I talked about why I have problems with that. I think ranking across the board is problematic, although I do think autism is a constellation of traits. 1:39 And I do think it could be useful to do specific individual ranking in terms of trait by trait. I think that's helpful. It gives you a better picture of yourself and what your abilities and what your challenges might be. Ranking people as a whole, to me, I feel that's a little problematic for various reasons, 2:01 such as the many different comorbidities, apraxia, for example, anxiety. all kinds of comorbidities come into play, as well as inherent differences like talents and abilities and intellect. It's just there's so much at play that I think ranking from low to high is problematic. And it's also, 2:26 it causes people to fall into a way of thinking that I don't feel is very helpful. I don't think it's helpful to to think of people as more or less autistic or more or less challenged or more or less worthwhile. I don't think that's a good way to think. 2:44 And I think when you're ranking individuals from low to high, you're always going to kind of suggest that or lead people into that kind of thinking, which I don't like. So I did discuss this before, but I just wanted to put it out there kind of as a disclaimer. 2:59 So what I did, and I have a blog post on this that I'll link to. What I did for myself was I looked at the DSM-5. I don't like the DSM-5. I don't like that it calls autism a disorder. I don't like that it ranks people. 3:14 But I do think it does a fair job of describing observable traits in autistics. I don't find it totally useless, even though I have issues with it. So what I kind of did is I took the traits that were listed in the DSM-5 and sort of adapted them to better reflect me. 3:35 And I used those traits to come up with categories for myself. And I made various charts and put them in my blog, which people seem to like. I'll link to that. And the chart showed my different characteristics. And this is not an idea that's specific to me. 3:57 You could see a lot of people will be looking at autism in this way. It's a spectrum, but it's not a linear spectrum. It's more of like a radial spectrum, which I think is interesting. You know, it's kind of interesting in terms of dimensionality. 4:11 We think of a spectrum as high to low, and technically that's what it is. But that's a linear 2D kind of dimensionality, where if you want to think of it more 3D, kind of as a radial sort of thing, you could do that too. So what I did is I came up with 10 categories. 4:31 One of my things had 10 categories. One had 12 because it just worked better for the type of charts I used. But the categories I used were hypersensitivity, hyposensitivity, hyper fixations, special interests, nonverbal communication. I don't like that word nonverbal, but I didn't know what else to use. 4:54 Some people will call it social cues, but I find that confusing too. But that's basically your ability. It should probably be called non-speaking communication, your ability to communicate and to read cues without speaking. Conversation. I use conversation. So instead of Expressive communication. I just kind of lumped conversation together. Relationships, transitions, echolalia, repetitive motor, and pattern recognition. 5:28 And then I rated myself. in ...
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    20 分
  • 4 Issues with the Telepathy Tapes Podcast EP 12 (3rd in my Autism and Psychic Abilities series)
    2025/06/06
    In this episode, I talk about 4 possible issues with the Telepathy Tapes podcast AND share a great resource for further reading. I hope I've offered a more nuanced look at the Telepathy Tapes podcast in this episode (which is the 3rd in what has become my Autism and Psychic Abilities series) than I did in my previous episodes! The first two episodes are: Autism and Psychic Experience EP 10 (#1 in series)Autistic Traits and Psychic Abilities EP 11 (#2 in series) The resource I mentioned in the podcast is: SarahCook.substack.com/p/for-the-birds-radical-empathy This is an excellent article and a really good Substack to follow. You can also follow my Substack if you're so inclined at: BarbaraGraver.substack.com If you like my content, please follow the podcast! Full transcript follows. If you need closed captioning (or the transcript is cut off), please listen via the podbean app or at AutisticPOV.com (https://www.autisticpov.com/). Full Transcript for EP 12 0:01 Welcome to Autistic POV. My name is Barbara Graver and I started this podcast to share a bit of my journey as a late diagnosed autistic. Hey everybody, this is Barbara Graver. Thank you for joining me today on Autistic POV. This is our third episode in what has kind of become a series on psychic ability. 0:31 I recorded episode one after I discovered the telepathy tapes far later than everybody else on the internet, and we'll talk a bit about that. And then I recorded episode two once I learned a little bit more about the podcast. And I talked about a lot of other things in these episodes. I talked about 0:49 my own experiences and I talked about parapsychology and a little bit about the ruling scientific paradigm in our society. But I talked about the telepathy tapes a lot too. And so I wanted to speak just a little bit on that in this episode because when I did the first episode, I was really excited to discover the podcast. 1:12 And then when I did the second episode and I was a little more aware of some of the controversy around it, I was a little more dialed back. But if you're not familiar with the podcast, it's a podcast about telepathy. and in it they feature several different non-speaking autistic individuals who are demonstrating telepathic abilities. 1:35 And it's really compelling, compelling podcast, but a lot of people have had a problem with it. And looking at it a little more critically than I maybe did initially, I could appreciate that. I think there are a few issues around it. So I wanted to just kind of share my take on that. 1:52 And I think the one problem is that we have a very materialistic mindset. There's a lot of prejudice against anything that is in any way immaterial, non-local, psychic. That's always, always, always going to be challenged. So talked about that, I think, in the first episode. I'll link to all of them. Number two, 2:16 which I talked about in the second episode in this series, I think there's just kind of a general disregard for the lived experience of autistic people. That's very pervasive in our society. So that's another issue that has played a part in generating controversy around this podcast. Number three, 2:35 I think that some people have raised concerns about the potential for exploitation and of non-speaking autistics and their families. And I think that's valid. I think that's something that's worth discussing. And also there is a lot of confusion around augmented and alternative communication and facilitated communication, which is somewhat different. 2:58 So there are a lot of things that kind of come into play. And this All of this was a lot for me to take on. I'm not sure I would have taken it on if I'd realized how much there was to it. But I am glad I did. 3:12 I'm glad I did because exploring this helped me increase my understanding of autism as a spectrum, which I think I'll talk about a little more in the next episode. It helped me kind of come to terms with some of my own experience. It helped me organize my thoughts. 3:29 But I was a little bit all over the place when I did it. So kind of want to try to sum it up a little. As far as the first and second points, the scientific community and the prejudice against the lived experience of autistic people, I think I've discussed that enough. Number four, 3:47 talking about augmented and assisted communication, I think it's absolutely valid, but not everyone understands it. And more relevantly, the more variables you put into research and the more complex it becomes. And when you're trying to research anything to do with psi, telepathy, precognition, clairvoyance, whatever it may be, 4:11 it's already difficult and it's already going to be challenged like crazy. So having that extra variable of the communication devices does make this more complex, definitely. So those are the four things I kind of see with issues with the podcast. However, I don't mean to say that I discount it. I found it very convincing. 4:37 I found it very ...
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    12 分

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