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Ben's Story

Ben's Story

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 In this episode of the Young Tongues Podcast, host Barbara interviews Ben, one of the original members of the peer support group. Ben shares his journey from initial diagnosis of tongue cancer to his extensive treatment and the long-term side effects he has endured. He discusses the moment he realized something was wrong, the process of his diagnosis, and the multitude of treatments he underwent, including the removal of 80% of his tongue and subsequent reconstruction. Ben elaborates on the challenges of radiation, describing the physical and emotional toll it took. He also explores the lasting impact on his speech and how he manages social interactions when people struggle to understand him. Beyond speech, the podcast delves into Ben's challenges with eating and maintaining oral health, especially dealing with painful high-fluoride toothpaste post-radiation. The discussion also covers managing radiation-induced fibrosis in his neck, the importance of ongoing physiotherapy, and pain management strategies. Finally, the episode highlights Ben's active involvement in creative arts and community support, exemplifying his resilience and generous spirit in helping fellow cancer survivors.

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