The final episode of Bringing Sickle Cell Disease to Life explores the concepts of putting research into practice, implementation science, and advocacy. Dr. Wally Smith hears from sickle cell pioneer and researcher Dr. Marilyn Hughes Gaston about early research with hydroxyurea. Sickle cell disease (SCD) provider and warrior Dr. Titilope Fasipe talks about how she learned to be an advocate to influence public policy. The season closes with final encouraging words from clinicians and researchers in SCD, including Drs. James Eckman, JJ Strouse, Michael DeBaun, and Solomon Ofori-Acquah. Learn more by reading through the resources in the list below.

• ASH Advocacy Leadership Institute - https://www.hematology.org/advocacy/ali
• ASH Sickle Cell Disease Initiative - https://www.hematology.org/advocacy/sickle-cell-disease-initiative
• ASH Research Collaborative - https://www.ashresearchcollaborative.org/s/
• ASH Minority Recruitment Initiative - https://www.hematology.org/awards/minority-recruitment

Music: "Envision" Kevin MacLeod (incompetech.com) Licensed under Creative Commons: By Attribution 4.0 License http://creativecommons.org/licenses/by/4.0/

Sickle cell disease (SCD) affects people all over the world. In this episode, Dr. Wally Smith interviews Dr. Russell Ware, an SCD provider and researcher who assembled an international team of experts to participate in global clinical trials. International SCD researcher Dr. Solomon Ofori-Acquah shares the story of how he got into research and how he expanded his projects to include many African countries. Learn more by reading through the resources in the list below.

• Caribbean Network of Researchers on Sickle Cell Disease and Thalassemias (CAREST) - https://carest-network.org/?lang=en
• Global Sickle Cell Disease Network (GSCDN) - https://www.globalsicklecelldisease.org/
• ASH Consortium on Newborn Screening in Africa (CONSA) - https://www.hematology.org/global-initiatives/consortium-on-newborn-screening-in-africa
• ASH Sickle Cell Disease Initiative - https://www.hematology.org/advocacy/sickle-cell-disease-initiative
• ASH Research Collaborative - https://www.ashresearchcollaborative.org/s/
• ASH Minority Recruitment Initiative - https://www.hematology.org/awards/minority-recruitment

Music: "Envision" Kevin MacLeod (incompetech.com) Licensed under Creative Commons: By Attribution 4.0 License http://creativecommons.org/licenses/by/4.0/

Not enough hematologists specialize in sickle cell disease (SCD) to reach all the people who need care. Host Dr. Wally Smith talks with Dr. JJ Strouse about outreach programs he has developed to reach individuals in rural communities. SCD expert care provider and researcher Dr. Michael DeBaun describes how he involves physicians from many other disciplines to treat people with SCD. Dr. James Eckman describes how he has implemented physician extenders to engage non-physicians in important care roles. Shauna Whisenton provides the perspective of someone living with SCD regarding how community health workers provide care. Dr. Sophie Lanzkron explains how a hub and spoke model supports providers and their teams so that all individuals can access high-quality care. Learn more by reading through the resources in the list below.

• ASH Sickle Cell Disease Initiative - https://www.hematology.org/advocacy/sickle-cell-disease-initiative
• ASH Research Collaborative - https://www.ashresearchcollaborative.org/s/
• ASH SCD guidelines for management of acute and chronic pain - https://ashpublications.org/bloodadvances/article/4/12/2656/460974/American-Society-of-Hematology-2020-guidelines-for
• American College of Emergency Physicians managing sickle cell disease in the ED point-of-care tool - https://www.acep.org/sickle-cell/
• ASH Minority Recruitment Initiative - https://www.hematology.org/awards/minority-recruitment
• International Association of Sickle Cell Nurses and Professional Associates - https://www.iascnapa.org/#:~:text=Our%20association's%20mission%20is%20to,cell%20disease%20through%20advocacy%2C%20standardized

Music: "Envision" Kevin MacLeod (incompetech.com) Licensed under Creative Commons: By Attribution 4.0 License http://creativecommons.org/licenses/by/4.0/