『Demand and Disrupt』のカバーアート

Demand and Disrupt

Demand and Disrupt

著者: Kimberly Parsley
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Advocacy and information for people with disabilities by people with disabilities.Kimberly Parsley 社会科学 衛生・健康的な生活
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  • Episode 58: CAL Conversation: Navigating Healthcare as a Person with a Disability
    2025/07/13
    Kimberly talks with Carissa and Keith about dealing with doctors, medical equipment, and the healthcare establishment as people with disabilities. They discuss a recent study that shows disabled people are discovering cancers at later stages because of the inaccessibility or difficulty of early cancer screening procedures for people with disabilities. Plus, Sam and Kimberly talk about disability pride month. Below is an article that talks about the reason for celebrating disability pride. thearc.org/blog/why-and-how-to-celebrate-disability-pride-month/ Thanks to Chris Ankin for use of his song, “Change.” The book "A Celebration of Family: Stories of Parents with Disabilities." is available from Amazon here. Be sure to follow the Advocado Press Facebook page Visit Appalachian Assistive Technology Loan Fund for assistance. Visit Moving Forward, the Advocado Press blog. Send comments and questions to demandanddisrupt@gmail.com Demand and Disrupt is sponsored by the Advocado Press and the Center For Accessible Living. You can find the transcript in the show notes below when they become available. Transcript: You're listening to Demand and Disrupt, the podcast for information about accessibility, advocacy, and all things disability. Kimberly: Welcome to Demand and Disrupt, a disability podcast. I am your host, Kimberly Parsley. Sam: And I'm your co-host, Sam Moore. Kimberly, we are officially in the dog days of summer. Kimberly: It is so hot here, isn't it? Sam: It's so hot in Kentucky, anywhere around Kentucky. Doesn't really matter where you are. There's no relief at this point. Kimberly: None at all except air conditioning. Sam: Yeah, exactly. Which luckily you and I are in some knock on wood there. Kimberly: I tell you, I tell you, we've been without air conditioning a couple of times, and it is miserable. You and I were talking people in Kentucky. We live here for the spring and the fall, right? Because it is just beautiful in spring and fall. Sam: No better place to be those two seasons. Kimberly: Nowhere. I mean, it is absolutely gorgeous. But, man, it is hot in the summer and it's summers are so long. And then lately, the winters have been cold and either. Sam: Yeah, you definitely get both extremes here. Kimberly: You really do anymore. I mean, even even in the winter, it's even if it's warm, it's rainy, you know. Sam: And so you kind of got to take the good with the bad. But we definitely get four seasons, unlike Florida, where I think they get like two. Kimberly: They get like I think they get like one and then a week or something else. Sam: Yeah, a week or something else. That's probably about right. Anybody from Florida, if you're listening, correct us if we're wrong. Kimberly: Do tell us if we're wrong. Sam: Email demandanddisrupt@gmail.com You know, we've been we've done the vacation thing there. Kimberly and I both have, but just not spent long durations of time there. Kimberly: No, only been there during tourist season. And, you know. Sam: Yeah, well, we started going on fall break before fall break. You know, really caught on. And now everybody goes on fall break. If you have kids, you know. Kimberly: Yeah, you go on fall break. But now you get hurricanes during fall break. Sam: Well, this is true. Yeah. And we used to go to get away from people from Henderson. But now, you know, 70 percent of Henderson go south. Kimberly: Yeah, exactly. Sam: We we we'd we'd be diving right into most of them if we went down to the coast. Kimberly: Exactly. Exactly. But we are in July and it is miserable here. But it is Disability Pride Month. Sam: That it is. Yes, indeed. Kimberly: So I thought, well, today, my guest is for the interview segment is Carissa Johnson and Keith Hosey. And we are going to talk about navigating the health care system as a person with a disability. So real, real fun stuff there coming. Sam: You know, really informative. It's it's, you know, a useful topic. Kimberly: Oh, it's a great conversation. I mean, we had a great conversation. But yeah, but before that, I thought that you and I might just dive into the controversial topic. Sam: I think you'll say dive into the pool. Kimberly: No. Well, that would be better. But that'd be great. The controversial topic of Disability Pride Month and how it's celebrated. Now, Disability Pride Month is celebrated in July because in July, I believe, July 26th of 1990 is when the Americans with Disabilities Act was signed into law. And that really changed the landscape of disability. And sort of since then, people have kind of made disability pride. We celebrate disability pride the whole month. Sam: But hard to believe that was 35 years ago. It's almost to the day. Kimberly: Yeah, it does. But, you know, people have their their feelings about disability pride. So, Sam, what I mean, my feelings are well known on this topic. What and on most topics, to be fair. But so where do you where do you stand on the whole is disability? You should be ...
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    55 分
  • Episode 57: Breaking Through Barriers to Conquer College
    2025/06/28
    She first experienced vision complications at the age of 20, but never let this stop her from pursuing her aspirations...and we're beyond excited to welcome her to this episode of “Demand and Disrupt”!! She is Stephanie Levin of New Jersey, who holds titles ranging from PHD candidate, to student affairs assistant, to even recently published author! Her debut is entitled “Picking Up the Pieces: Finding My Way as a Visually Impaired Woman in Higher Education”. Join Stephanie as she describes the onset of her partial vision loss, the inspiration behind her book, and the content we'll be treated to between its covers. She'll also explain the PHD program in which she's enrolled, detail her Student Affairs position at Rowan University, and explain the means by which we can purchase her book. To learn even more about Stephanie Levin, feel free to email her at levins@rowan.edu or visit her website at stephanieanlevin.com Visit the article Sam and Kimberly discuss at the beginning of the show at https://www.americanbar.org/groups/diversity/disabilityrights/news/why-disabled-people-self-accommodate/ Thanks to Chris Ankin for use of his song, “Change.” The book "A Celebration of Family: Stories of Parents with Disabilities." is available from Amazon here. Be sure to follow the Advocado Press Facebook page Visit Appalachian Assistive Technology Loan Fund for assistance. Visit Moving Forward, the Advocado Press blog. Send comments and questions to demandanddisrupt@gmail.com Demand and Disrupt is sponsored by the Advocado Press and the Center For Accessible Living. You can find the transcript in the show notes below when they become available. Transcript: You're listening to Demand and Disrupt, the podcast for information about accessibility, advocacy, and all things disability. Sam: Welcome one and all to Demand and Disrupt, a disability podcast. We are so pleased today to be joined by a lovely lady named Stephanie Levin. She is a newly published author documenting her recent disability and vision loss in a book entitled, Picking Up the Pieces, Finding My Way as a Visually Impaired Woman in Higher Education. So we will be chatting with Stephanie in mere, mere moments. But right now I'm pleased to bring in my partner, Ms. Kimberly Parsley. Kimberly, how are you? Kimberly: I'm doing very well, Sam. Thank you. I listened to your interview with Stephanie and a wonderful job. Lots, lots of talking points there. I know we can. Most of us listening to this podcast know what that's like at the beginning of your disability journey. Come into terms with that. It's tough, isn't it? Sam: Yeah, it is tough. And, you know, I've been blind. Well, the first time we discovered my blindness, it was seven months old. But this lady, Stephanie, she first experienced vision loss at the age of 20, which was not that long ago. So, you know, it was new terrain for her while she was going to college. But it didn't didn't stop her from pursuing her goals and and aspirations. But yes, those in our audience who are in the early stages of their disability, whatever that disability may be, they ought to be able to identify with Stephanie for sure. Kimberly: Absolutely, absolutely. It's it's it's tough. And, you know, sometimes sometimes you go through a thing and you think you're done and, you know, disability creeps up again. It's it's not always a straight line, is it? Sam: Yeah. Even when you think maybe it's over and done. Sometimes it creeps back or or sometimes other challenges, other disabilities present themselves. Kimberly: Yeah. You know, what is it they say about disability? It's the one minority that we could all join at any time. Sam: Oh, I've never heard that, but I like it. Kimberly: Yeah, it's true. Sam: And if we if we don't have a disability, chances are we know somebody who does. Kimberly: Or or we could. I mean, you know, Sam: Yeah, maybe that's true. Maybe we have a disability and don't know about it yet. Kimberly: Yeah. You know, things can happen. So, yeah, it's interesting to read people's initial their early stages of that of that journey. And hers was in higher education and fighting for for what she needed and coming to terms with needing those accommodations. Sam: She's a she's a Jersey girl. I guess, as they say at their joys, a girl, they always have their unique ways of saying things. (Laughter) Sam: But anyhow, yeah, as we mentioned, I believe, you know, what's history? My first interview from Jersey and maybe not my last. But, you know, she spent her life in the in the Philly area. And, you know, we had a nice conversation off the air about Philly cheesesteak sandwiches because I am a big fan. Kimberly: Oh, are you? Wow. Sam: Philly cheesesteak sandwiches. (Laghter) Sam: And I don't know about you, Kimberly, but I definitely love them. And they say that you haven't had a Philly cheesesteak sandwich done right until you've had one in Philly, which is that right? Kimberly: Is that right? Not me, me ...
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    1 時間 2 分
  • Episode 56: Innovative Programming to Reach all of Kentucky
    2025/06/14

    Kimberly talks with Dr. Patrick Kitzman, professor of Physical Therapy at University of Kentucky, about assistive technologies and some innovative programs he’s involved with to help get assistive technology to the people who need it most across all of Kentucky.

    Below are links to some of the programs mentioned in the show:

    Various Assistive Technology Resources Centers (ATRC) in KY

    Kentucky Appalachian Rural Rehabilitation Network (KARRN)

    Appalachian Center for Assistive Technology (ACAT)

    Project CARAT durable medical equipment refurbishing and reutilization program

    Thanks to Chris Ankin for use of his song, “Change.”

    The book "A Celebration of Family: Stories of Parents with Disabilities." is available from Amazon here.

    Be sure to follow the Advocado Press Facebook page

    Visit Appalachian Assistive Technology Loan Fund for assistance.

    Visit Moving Forward, the Advocado Press blog.

    Send comments and questions to demandanddisrupt@gmail.com

    Demand and Disrupt is sponsored by the Advocado Press and the Center For Accessible Living.

    You can find the transcript in the show notes below when they become available.

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    40 分

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