Shelby is an adult living with 22q and has a passion for sewing. She began sewing at the age of 11 and has been sewing every since. Making quilts for individuals with 22q and mailing them across the country. She has made over 43 quilts to date and doesn't intend on stopping any time soon.

Her mom, Stacy also shared how scary and challenging Shelby's first few years of life were. Shelby had genetic testing done around the age of one but nothing came back positive. So at two and half years old, she sent to a clef and pallet team, who were able to diagnose her and test her for 22q. Stacy remembers receiving that phone call that confirming that her daughter had 22q. As she hung up the phone she felt numb and crushed all at once. She knew she had to learn Shelby and what this new diagnosis meant for her baby girl.

Links:

Shelby's Stories FB: https://www.facebook.com/groups/450865518418577/?ref=share_group_link

22q Postcard Swap: https://www.facebook.com/groups/270932664985684/?ref=share_group_link

Amazon Wish List: https://www.amazon.com/hz/wishlist/ls/1K2FHPHP6UIZM?ref_=wl_share

Walmart Wish List: https://www.walmart.com/registry/ER/f426d3b8-347b-42b8-8a9d-5240a9b99bb8

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Within this episode we discussed:

• Teaching Shelby to advocate for herself
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• 22q family foundation
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• Nationwide National Confrence for 22q
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• 2 sinus surgeries
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• 2 hernia repairs
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• Left Knee Surgery - patella instabilities
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• Hypoparathyroidism
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• “I have 22q but 22q doesn’t have me.” -Shelby
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• Shelby on Instagram @

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If you would like to contact the 22q Podcast with any questions, comments or if you are interested on being on this podcast email Becky at 22qpodcast@gmail.com. Don't forget to subscribe and share this podcast to help raise awareness about 22q. And never forget 22q family that YOU are not alone.

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Email - 22qpodcast@gmail.com

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