• Living with XLH: Parenting a child with a rare disease

  • 2024/11/23
  • 再生時間： 38 分
  • ポッドキャスト

Living with XLH: Parenting a child with a rare disease

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  • This week, XLH Australia President Sandy Bevc and XLH Australia Vice President Naomi Ford speak with their mothers about their experiences parenting a child with a rare condition.

    Topics discussed:

    1. The journey to diagnosis
    2. Parenting a child with a rare disease
    3. Navigating healthcare and advocacy

    Links mentioned in this episode: www.xlhaustralia.com

    This podcast is hosted by ZenCast.fm
    続きを読む 一部表示

あらすじ・解説

This week, XLH Australia President Sandy Bevc and XLH Australia Vice President Naomi Ford speak with their mothers about their experiences parenting a child with a rare condition.

Topics discussed:

  1. The journey to diagnosis
  2. Parenting a child with a rare disease
  3. Navigating healthcare and advocacy

Links mentioned in this episode: www.xlhaustralia.com

This podcast is hosted by ZenCast.fm
続きを読む 一部表示

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