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  • We Built a Fabulous Care Team Around Us: With guest Mike George

    We Built a Fabulous Care Team Around Us: With guest Mike George
    2025/02/20
    Mike George helps families rewrite their caregiving story – from one of sacrifice and exhaustion to one of joy, strength and resilience. A family caregiver himself for 3 decades, Mike intimately understands the burdens of supporting the primary care of a loved one. But he also knows the tremendous fulfillment it can bring. This lived experience led him to create The Soaring Families WayTM, a proven method that can be every family’s reliable companion on their journey to joy. He is a speaker, author, and co-founder of Soaring Families whose mission is to redefine caregiving for families.

    Mike share's his story of care for his son, how he and his wife created a bigger team of caregivers around them and teach others to do so.

    Find more about Soaring Families and The Pink Book here: https://www.soaringfamilies.com/
    Mike welcomes you to email him directly: mike@soaringfamilies.com

    Become a supporter of this podcast: https://www.spreaker.com/podcast/love-doesn-t-pay-the-bills--5692861/support.
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    38 分
  • Microdoses of Self Care for Family Caregivers: With Guest Dr. Merle Griff

    Microdoses of Self Care for Family Caregivers: With Guest Dr. Merle Griff
    2025/02/13
    Dr. Merle Griff is the author of the author of "Solace in the Storm: Caring for Loved Ones of Every Generation" as well as the owner of SarahCare Senior Solutions. She has lived experience caring for two family members: her mother and her husband. Lisa talks with Dr. Griff about ways to maintain healthy communication in relationships as family caregivers, particularly listening to the care recipient deeply. She also suggests micro doses of self care for exceptionally high acuity family caregivers. One such micro dose of self care might surprise you! (hint: Wives sometimes point out that many husbands do this to avoid domestic labor). Family caregivers will appreciate Dr. Merle's no nonsense approach to understanding and valuing our work.

    Dr Griff's book can be found here: https://www.amazon.com/Solace-Storm-Caring-Loved-Generation/dp/B0C2TYQ2PK/ref=sr_1_2?crid=2YP4LMWT0EILB&keywords=solace+in+the+storm&qid=1685028259&sprefix=solace+in+the+storm,aps,96&sr=8-2

    More information about SarahCare Senior Solutions can be found here: https://sarahcare.com/

    The free task app and philosophy Lisa mentioned which make it easier to unhook mentally from all the planning of the stuff is Todoist and "Getting Things Done". Dr Griff's suggestion of a list for help wanted can also be easily maintained on this app with labels. https://www.todoist.com/productivity-methods/getting-things-done

    Become a supporter of this podcast: https://www.spreaker.com/podcast/love-doesn-t-pay-the-bills--5692861/support.
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    30 分
  • A Systemic Failure to Invest in the Care Workforce: With Guest Joe Macbeth

    A Systemic Failure to Invest in the Care Workforce: With Guest Joe Macbeth
    2025/02/06
    The Chief Executive Officer and President of the National Alliance for Direct
    Support Professionals (NADSP), Joe Macbeth joins us to talk about the labor pool for these employees. Joe's experience in the field of intellectual and developmental disabilities(IDD)
    goes back 42 years - beginning as a direct support professional(DSP). Macbeth is recognized as an international leader when it comes to advocacy to recognize direct support as a profession. His work contributes to solving workforce challenges that affect the intellectual and developmental disability service system.

    https://nadsp.org/about-us/our-staff/

    Become a supporter of this podcast: https://www.spreaker.com/podcast/love-doesn-t-pay-the-bills--5692861/support.
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    38 分
  • This Real Person Needs Real Supports: With Guest Calli Ross

    This Real Person Needs Real Supports: With Guest Calli Ross
    2025/01/30
    Calli Ross returns to the show to discuss a bill currently making it's way through the Oregon state legislature. Named for her son, Tensy's law will make good on the legislative intent behind OR SB91 passed in 2023. SB91 created a waiver for children with very high disability related support needs to pay their parents as direct support professional (DSP) providers under Medicaid Home and Community Based Services. However, SB91 also created a lengthy waitlist, with only about 10% of otherwise eligible children having access to parent paid caregiving. Tensy's law will ensure that all eligible children can receive supports by paying their parents as caregivers.

    There will be a hearing about Tensy's law at the Oregon state capitol on Feb 4, 2025 which happens to be Tensy's birthday!

    Find information about the Feb 4th 2025 hearing here: https://www.facebook.com/share/1Eqk88uixr/
    follow Advocates for Disabiliy Supports here: https://www.facebook.com/ADSOregon

    testimony for SB91, why parent paid caregiving is important(starting at about 1:20 into the video): https://olis.oregonlegislature.gov/liz/mediaplayer/?clientID=4879615486&eventID=2023021052

    Become a supporter of this podcast: https://www.spreaker.com/podcast/love-doesn-t-pay-the-bills--5692861/support.
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    32 分
  • Grab a Little Kindness for Ourselves: With Guest Susanne White

    Grab a Little Kindness for Ourselves: With Guest Susanne White
    2025/01/16
    Susanne cared for her mother and her father simultaneously. Out of that experience grew Susanne's service to other family caregivers: Caregiverwarrior.com and the book Self Care for Caregivers. She shares wisdom from her intense caregiving. She writes that self care is "Not All Bubble Baths and Yoga Pants" and at LDPTB we agree! Nontheless, treating oneself with kindness matters in the most high acuity care situations. Instead of self-care let's talk about self-advocacy, self-awareness and extending kindness to ourselves as we do our loved ones.

    Check out Susanne's website!

    Become a supporter of this podcast: https://www.spreaker.com/podcast/love-doesn-t-pay-the-bills--5692861/support.
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    30 分
  • Looking at Care From Both Sides Now: With Guest Becky Curran Kekula

    Looking at Care From Both Sides Now: With Guest Becky Curran Kekula
    2025/01/09
    Our guest today is Becky Curran Kekula. Becky is a disability inclusion advocade. She is a speaker and movie industry equity and inclusion expert. Her experiences of both achrondoplasia, which is a form of drawfism, and medical motherhood give Becky a unique persepective on care.

    http://www.beckymotivates.com/About-Us.html



    Become a supporter of this podcast: https://www.spreaker.com/podcast/love-doesn-t-pay-the-bills--5692861/support.
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    36 分
  • Replay of Fully Fund Care: with guest Calli Ross

    Replay of Fully Fund Care: with guest Calli Ross
    2024/12/26
    This episode was originally published on March 7, 2023. The Guest this week is Calli Ross who is a family caregiver and leader in the movement in Oregon to allow parents to be paid for providing extraordinary care to their minor children with disabilities. In the 2025 legislative session, Tensy's law, named for her son will be introduced to eliminate the lottery system that was created with SB91 which allows only about 10% of otherwise eliegible children to hire parent providers for pay. Tensy's law will allow all otherwise eligible children to pay parent providers for extraordinary care needs, the same as they would be able to pay any other direct support professional.

    https://www.facebook.com/groups/1750726871736838

    https://www.facebook.com/ADSOregon

    https://olis.oregonlegislature.gov/liz/mediaplayer/?clientID=4879615486&eventID=2023021052

    Become a supporter of this podcast: https://www.spreaker.com/podcast/love-doesn-t-pay-the-bills--5692861/support.
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    43 分
  • These Are All Normal Feelings: With Guest Lynn Abaté-Johnson

    These Are All Normal Feelings: With Guest Lynn Abaté-Johnson
    2024/12/19
    Lynn Abaté-Johnson joins Lisa to discuss the breadth and complexity of our human feelings as caregivers, particularly at the holidays. We reflect on the paradox that embracing difficult emotions can bring more ability to adjust to them, live with them, and notice the more pleasant ones which can exist right alongside them.

    After being a primary caregiver for her mom for over six years, International Best-Selling Author & Speaker, Lynn Abaté-Johnson, understands the typhoon of emotions and responsibilities that come with caring for a loved one. Like most family caregivers, Lynn juggled caregiving duties with a full-time career. In her daily life, she’s a global community builder and business consultant. Lynn wrote the book, “Out Of Love: A Daughter’s Journey With Her Mom To The End” to normalize and de-stigmatize what many families may take for granted or miss in their roles as caregivers. She offers practical tools & resources, along with encouragement for other family caregivers, with the goal of bringing light to the dark and peace to the soul.

    Get a free chapter of the book here!

    Become a supporter of this podcast: https://www.spreaker.com/podcast/love-doesn-t-pay-the-bills--5692861/support.
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    35 分