On the tip of my tongue

著者: Jonathan Hirons and Rob Edwards
  • サマリー

  • In January 2019, while working in London, Jonathan Hirons’s life suddenly changed.

    He remembers sitting in a business meeting with colleagues discussing a work project when he “began to feel strange”.

    Jonathan soon found that he couldn’t make changes to the document he was working on, and he began to struggle to find the words to speak.

    Fortunately, realising something was very wrong, his colleagues acted quickly and called an ambulance.

    Jonathan was rushed to University College Hospital, where CT and MRI scans showed he had suffered a stroke caused by a bleed on the brain. He spent five nights in hospital and was diagnosed with aphasia. Following Jonathan’s stroke, many everyday things became a struggle, including work. “My work stopped on that day,” he explained. “Initially, I couldn’t speak properly, and I was unable to read or write”.

    Additionally, Jonathan couldn’t remember much of where he lived. He remembered his postcode, but not his address, mobile number and the PIN for his bank account. Jonathan also sometimes had trouble understanding what was being said to him. He could, however, sign his name.

    This was a worrying time for Jonathan and his loved ones. He had to stop driving. His wife, Ann, ensured he carried a card with his name and address and contact numbers.

    However, recognising the importance of starting the rehabilitation process as soon as possible, Ann also encouraged Jonathan to begin reading out loud.

    Every day a small amount of time was set aside to read a few lines of a book. In addition, Ann started using nursery school flashcards to help Jonathan with word recognition and writing.

    When speech therapy started, Jonathan vastly improved and is now at the point where he can read and write more fluently.

    “Over time and with much help from my wife and speech therapists, I got my speech, my reading and my writing back on track,” said Jonathan. “Even now, I find reading and writing difficult, particularly if I’m tired and I still get words mixed up, but I’m a lot better”.

    Jonathan is now using his experiences and creative skills to help others impacted by aphasia with his film ‘On the Tip of my Tongue.’

    After successful funding campaigns, help from the Tavistock Trust and support with PR, the film was finished in September 2022.

    “Currently, I am showing it to people in the health industry as a training resource: it recently has been successfully presented to Carers UK,” said Jonathan. He has also produced a film called ‘What is aphasia?’

    “So here I am four years later, and I’m still wanting to put the word out about aphasia, so if you read this, please pass it on to as many people as you can so that we can keep the interest going,” he added.

    Jonathan said he wants people to understand that aphasia is a hidden disability and that he feels there is a lack of support once the initial rehabilitation is over.

    “The main problem with aphasia is it is very difficult to explain. People say, ‘you seem fine,’ but they don’t know about [difficulties with not] being able to form words quickly or following a conversation in a group. Just because you have lost your words, it does not mean you have lost your intellect.

    “Recovery from strokes and head injuries vary considerably. Some people can regain the ability to function independently others need more help. Help and support tends to come from charities and the family.” But despite the immense challenges faced by people living with aphasia, Jonathan’s message to others is one of hope. “Persevere. It may seem to be hopeless, but improvements will come. Engage with fellow sufferers and, if possible, join a group”.

    © 2024 On the tip of my tongue
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  • On the tip of my tongue: Series 1 Episode 6 - What we have learned so far...
    2024/08/08

    Send us a Text Message.

    Reflecting on the Journey: Uncovering the Themes of Aphasia Awareness

    In the final episode of Series 1 of 'On the Tip of My Tongue,' hosts Rob Edwards and Jonathan Hirons review the key themes and insights from their podcast series dedicated to raising awareness about aphasia. They discuss the stigmatization and misunderstandings surrounding the condition, share personal stories from guests such as Dr. Trevor Powell and insights from Michael Shann on the role of carers. The episode underscores the importance of caring, the challenges faced by those with aphasia, and looks ahead to future technological advancements in treatment.

    00:00 Introduction to the Podcast
    00:16 Reflecting on the Series
    00:59 Understanding Aphasia and Stigmatization
    05:22 Personal Experiences with Aphasia
    07:43 The Role of Carers
    10:59 Future of Aphasia Treatment
    11:15 Conclusion and Next Steps

    Support the Show.

    To watch Jonathan’s film: https://tipofmytonguefilm.com

    http://x.com/buffaloloungeuk
    https://www.linkedin.com/in/jonathanhirons/

    The Tavistock Trust for Aphasia website

    http://aphasiatavistocktrust.org

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    11 分
  • On the tip of my tongue: Series 1 Episode 5 - Brain Health with Dr Trevor Powell
    2024/07/24

    Send us a Text Message.

    Intertwined Health: Neuropsychology, Brain Health, and Insights from Dr. Trevor Powell

    In this episode of 'On the Tip of My Tongue,' Dr. Trevor Powell, a consultant clinical neuropsychologist, discusses the interconnectedness of physical and mental health, emphasizing how psychological processes influence physical conditions. He addresses the stigma surrounding mental health by comparing it to physical health problems. Dr. Powell provides insights into neuropsychology, detailing its evolution and its critical role in assessing and rehabilitating brain injuries. The conversation touches on cognitive rehabilitation, the significance of insight in brain injuries, and the importance of physical and mental activities for brain health. The episode also delves into aphasia, its impact on language functions, and aims to dispel prejudices associated with the condition. Additionally, there is a light-hearted discussion about walking football and its benefits for mental and physical well-being.

    00:00 Introduction to Dr. Trevor Powell
    01:56 The Interconnection of Physical and Mental Health
    03:48 Understanding Neuropsychology
    04:59 Insight and Cognitive Decline
    07:35 Dr. Powell's Journey and Charity Work
    11:03 Language Functions and Brain Injuries
    15:50 Walking Football and Mental Health
    18:16 Final Thoughts on Brain Health

    Trevor Powell is a Chartered Clinical Psychologist and Clinical Neuropsychologist with over 30 years experience of working in mental health and neuropsychology in the NHS.

    He is the clinical lead and manager for neuropsychology service in Berkshire and specialises in head injury (TBI) and more recently Asperger’s Syndrome (ASD).

    Dr Powell's books include: The Mental Health Handbook; Head Injury, A Practical Guide; The Brain Injury Workbook and, more recently, Recognising Asperger’s Syndrome.

    Support the Show.

    To watch Jonathan’s film: https://tipofmytonguefilm.com

    http://x.com/buffaloloungeuk
    https://www.linkedin.com/in/jonathanhirons/

    The Tavistock Trust for Aphasia website

    http://aphasiatavistocktrust.org

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    23 分
  • On the tip of my tongue Episode 5 - Dr Trevor Powell - Trailer
    2024/07/18

    Send us a Text Message.

    In this episode we talk to Dr Trevor Powell about Neuropsychology, the Brain and Aphasia, Joe Biden and Walking Football!

    Trevor Powell is a Chartered Clinical Psychologist and Clinical Neuropsychologist with over 30 years experience of working in mental health and neuropsychology in the NHS.

    He is the clinical lead and manager for neuropsychology service in Berkshire and specialises in head injury (TBI) and more recently Asperger’s Syndrome (ASD).

    Support the Show.

    To watch Jonathan’s film: https://tipofmytonguefilm.com

    http://x.com/buffaloloungeuk
    https://www.linkedin.com/in/jonathanhirons/

    The Tavistock Trust for Aphasia website

    http://aphasiatavistocktrust.org

    続きを読む 一部表示
    1分未満

あらすじ・解説

In January 2019, while working in London, Jonathan Hirons’s life suddenly changed.

He remembers sitting in a business meeting with colleagues discussing a work project when he “began to feel strange”.

Jonathan soon found that he couldn’t make changes to the document he was working on, and he began to struggle to find the words to speak.

Fortunately, realising something was very wrong, his colleagues acted quickly and called an ambulance.

Jonathan was rushed to University College Hospital, where CT and MRI scans showed he had suffered a stroke caused by a bleed on the brain. He spent five nights in hospital and was diagnosed with aphasia. Following Jonathan’s stroke, many everyday things became a struggle, including work. “My work stopped on that day,” he explained. “Initially, I couldn’t speak properly, and I was unable to read or write”.

Additionally, Jonathan couldn’t remember much of where he lived. He remembered his postcode, but not his address, mobile number and the PIN for his bank account. Jonathan also sometimes had trouble understanding what was being said to him. He could, however, sign his name.

This was a worrying time for Jonathan and his loved ones. He had to stop driving. His wife, Ann, ensured he carried a card with his name and address and contact numbers.

However, recognising the importance of starting the rehabilitation process as soon as possible, Ann also encouraged Jonathan to begin reading out loud.

Every day a small amount of time was set aside to read a few lines of a book. In addition, Ann started using nursery school flashcards to help Jonathan with word recognition and writing.

When speech therapy started, Jonathan vastly improved and is now at the point where he can read and write more fluently.

“Over time and with much help from my wife and speech therapists, I got my speech, my reading and my writing back on track,” said Jonathan. “Even now, I find reading and writing difficult, particularly if I’m tired and I still get words mixed up, but I’m a lot better”.

Jonathan is now using his experiences and creative skills to help others impacted by aphasia with his film ‘On the Tip of my Tongue.’

After successful funding campaigns, help from the Tavistock Trust and support with PR, the film was finished in September 2022.

“Currently, I am showing it to people in the health industry as a training resource: it recently has been successfully presented to Carers UK,” said Jonathan. He has also produced a film called ‘What is aphasia?’

“So here I am four years later, and I’m still wanting to put the word out about aphasia, so if you read this, please pass it on to as many people as you can so that we can keep the interest going,” he added.

Jonathan said he wants people to understand that aphasia is a hidden disability and that he feels there is a lack of support once the initial rehabilitation is over.

“The main problem with aphasia is it is very difficult to explain. People say, ‘you seem fine,’ but they don’t know about [difficulties with not] being able to form words quickly or following a conversation in a group. Just because you have lost your words, it does not mean you have lost your intellect.

“Recovery from strokes and head injuries vary considerably. Some people can regain the ability to function independently others need more help. Help and support tends to come from charities and the family.” But despite the immense challenges faced by people living with aphasia, Jonathan’s message to others is one of hope. “Persevere. It may seem to be hopeless, but improvements will come. Engage with fellow sufferers and, if possible, join a group”.

© 2024 On the tip of my tongue

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