Rare Disease Awareness Month - Leo's Story
2025/02/05
再生時間： 53 分
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Rare Disease Awareness Month - Leo's Story

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In 2021, Kim and Keith Firmin’s world was turned upside down after they were told during pregnancy that their unborn son had a complex heart - double inlet left ventricle (only 3 out of 4 heart chambers work) and pulmonary stenosis (heart valve disease). At just 9 days old, medical professionals noticed that Leo also had a type 3 laryngeal (Airway) cleft – which had to be surgically repaired 3 times. At 3 weeks old he had tracheostomy surgery. Today, his mother Kim, shares her story with Tahnee.
List of CharitiesREACT: for children under palliative care and very high needs. They give large amounts-Family Fund (large amounts every 2 years)-Maia Mouse (£250 minimum given)-Little Teds - Free caravan in Wales: Not wheelchair friendly-Make a wish foundation (3+). -Rainbow trust: Provides a family support worker-Newlife the Charity - Changing the lives of disabled children (newlifecharity.co.uk)- Big grants for large items-Home | JUMP Children's Charity (jumpchildrenscharity.co.uk) - Free photoshoots for families.

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あらすじ・解説

In 2021, Kim and Keith Firmin’s world was turned upside down after they were told during pregnancy that their unborn son had a complex heart - double inlet left ventricle (only 3 out of 4 heart chambers work) and pulmonary stenosis (heart valve disease). At just 9 days old, medical professionals noticed that Leo also had a type 3 laryngeal (Airway) cleft – which had to be surgically repaired 3 times. At 3 weeks old he had tracheostomy surgery. Today, his mother Kim, shares her story with Tahnee.

List of CharitiesREACT: for children under palliative care and very high needs. They give large amounts-Family Fund (large amounts every 2 years)-Maia Mouse (£250 minimum given)-Little Teds - Free caravan in Wales: Not wheelchair friendly-Make a wish foundation (3+). -Rainbow trust: Provides a family support worker-Newlife the Charity - Changing the lives of disabled children (newlifecharity.co.uk)- Big grants for large items-Home | JUMP Children's Charity (jumpchildrenscharity.co.uk) - Free photoshoots for families.

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