エピソード

  • RealTalk CDH: Pregnancy After Loss
    2025/01/21

    On this episode 2 CDH loss mamas share their journeys of loss and the difficult decision to try again. Whether you have lost a child to CDH or you know someone who has this episode is for you. Kirby and Sarah share with raw honesty what was helpful, what was not so helpful and everything in between. You will smile and you will shed a few tears, but ultimately you will be in awe of the strength and resilience of these two mothers and the bond they will always have with their babies.

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    1 時間 3 分
  • RealTalk CDH: CDH Round 2
    2025/01/13

    Listen in as I chat with Kelsey White, CDH Mama X 2. Kelsey shares her unbelievable journey that includes being a mommy to CDH Angel Avett and CDH Survivor Anders. Kelsey has faced the worst thing imaginable not once but twice and has come out with the most beautiful outlook on life. You will be blessed, I know I am.

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    45 分
  • RealTalk CDH: Kristin and Tom Polizzi
    2024/12/21

    On this episode I talk with Kristin and Tom Polizzi, parents to CDH Angel Charlie and Founders of Charlie's Warrior of the Angels. You will laugh and you will cry but mostly you will be in awe of these to amazing people. They have endured unimaginable tragedy yet they still find ways to bless others all while honoring their warrior son and his battle against CDH.

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    1 時間 14 分
  • RealTalk CDH: Nicoletta
    2024/12/09

    On this episode I talk with Nicoletta, CDH mom and founder of Healthcare Redefined. As both a CDH mom and a board certified patient advocate Nicoletta understands the overwhelming feelings of this diagnosis coupled with an extensive NICU stay and care coordination between multiple specialists. She shares how her company could help you navigate this journey!

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    43 分
  • RealTalk CDH: Dr Keijzer
    2024/11/04

    On this episode I chat with Dr Keijzer who is a pioneering researcher in the field of pediatric surgery and congenital anomalies, with a particular focus on congenital diaphragmatic hernia (CDH) and abnormal lung development.

    His cutting-edge research delves into the mechanisms of normal and abnormal lung development due to CDH, with the ultimate goal of developing a prenatal therapeutic intervention to improve the outcomes for babies born with this condition.

    Dr Keijzer shares his research and even answers the questions I know are bothering all CDH families when we first get diagnosed... Did I cause this? What could I have done differently?...

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    36 分
  • RealTalk CDH: Jami Z
    2024/09/28

    Join us as we hear from Jami, Shepherd's mama as she get's real about CDH, trach's and postpartum depression/anxiety. You will laugh, you will cry and you will be so glad you listened.

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    58 分
  • RealTalk CDH: FETO
    2024/05/21

    This episode is all about FETO. We hear from 3 moms who have asked the hard questions, done the research, had the procedure and are excited to share their journey with us all.

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    1 時間
  • RealTalk CDH: Newly Diagnosed
    2024/05/06

    Continuing with our series on tough questions we are talking about the tough questions parents ask themselves when they are first told their child has CDH. These are questions that maybe you were too embarrassed or even ashamed to ask. Maybe you were thinking you were alone in asking them or maybe you just didn’t feel comfortable sharing these thoughts with anyone. Well we are here, 3 CDH mamas with 3 different perspectives and 3 very different journeys getting real with it all in the hopes you feel validated, encouraged and ultimately a little less alone as you navigate this journey!

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    1 時間 25 分