• The MS Caregiver Conundrum

  • 著者： Jon Strum
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The MS Caregiver Conundrum

著者： Jon Strum
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  • The progressive and long-term nature of MS means that MS caregivers take on a responsibility that increases over time and can last for decades. Research has shown that this contribution often comes at an unacceptably high cost, as caregivers themselves face a significantly increased risk of reduced health and well-being. The MS Caregiver Conundrum, a special podcast series produced by RealTalk MS, features intimate audio portraits that illustrate the often overlooked role that MS caregivers play. We'll call out systemic inequities as well as best practices in caregiving while highlighting valuable caregiving resources and examining the public policy issues that impact caregivers. And we'll raise up the heroes – our own friends, family, and neighbors -- who quietly wake each day to walk a tightrope without a net, focused on caring for a loved one living with MS.
    Copyright 2023 All Rights Reserved
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  • Episode 8: The Impact of Public Policy on MS Caregivers with C. Grace Whiting

    Episode 8: The Impact of Public Policy on MS Caregivers with C. Grace Whiting
    2021/11/04

    Paid family leave, access to care, financial support, prescription drug costs, and tax credits for home modifications are just some of the public policy issues that affect MS caregivers every day. When it comes to advocacy, the National Alliance for Caregiving is a leader in conducting policy analysis and tracking legislation dealing with family caregiving issues.

    Joining me to discuss the impact of public policy on family caregivers and to highlight some of the public policy wins and some of the public policy challenges that affect family caregivers is C. Grace Whiting, the President and CEO of the National Alliance for Caregiving.
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    23 分
  • Episode 7: Embracing Carers with Lynn Taylor

    Episode 7: Embracing Carers with Lynn Taylor
    2021/10/28

    Embracing Carers is EMD Serono's global initiative to increase awareness, discussion, and action about the frequently overlooked needs of unpaid family caregivers.

    Collaborating with leading caregiver support organizations around the world, EMD Serono has published detailed research on the unmet needs of family caregivers, produced a documentary film to raise awareness of the role that MS caregivers play, and has gone so far as to include the voice of caregivers in the drug development process.

     

    Joining me to discuss why raising awareness of the role that unpaid family caregivers play is a strategic decision that EMD Serono has made, and to share some of their eye-opening research highlighting the unmet needs of family caregivers is Lynn Taylor, Senior Vice-President and Head of Global Healthcare Government & Public Affairs at EMD Serono.
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    23 分
  • Episode 6: MS Caregiver Support with David LaRue and Suzanne Bachman

    Episode 6: MS Caregiver Support with David LaRue and Suzanne Bachman
    2021/10/21

    Caregiving can sometimes feel overwhelming. And being able to turn to someone who understands the stresses and strains that can affect an MS caregiver and who knows how to access the kinds of resources and support programs that can get you moving forward again may be a perfect definition of the National MS Society's MS Navigator program.

    Joining me to talk about this extraordinary service that many MS caregivers may not even be aware of are MS Navigators David LaRue and Suzanne Bachman.
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    23 分

あらすじ・解説

The progressive and long-term nature of MS means that MS caregivers take on a responsibility that increases over time and can last for decades. Research has shown that this contribution often comes at an unacceptably high cost, as caregivers themselves face a significantly increased risk of reduced health and well-being. The MS Caregiver Conundrum, a special podcast series produced by RealTalk MS, features intimate audio portraits that illustrate the often overlooked role that MS caregivers play. We'll call out systemic inequities as well as best practices in caregiving while highlighting valuable caregiving resources and examining the public policy issues that impact caregivers. And we'll raise up the heroes – our own friends, family, and neighbors -- who quietly wake each day to walk a tightrope without a net, focused on caring for a loved one living with MS.
Copyright 2023 All Rights Reserved
社会科学 身体的病い・疾患 衛生・健康的な生活 歴史
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