検索キーワード： 著者 "RARE" すべてのカテゴリー

ABCs of NMOSD brings together the latest information and research about all things NMOSD, from diagnosis and treatment to quality of life and what it’s like to live with NMOSD. We invite medical experts and researchers, to share the latest up-to-date research and clinical knowledge. We have conversations with individuals who have been diagnosed with NMOSD, their caregivers, and allied health professionals. We give tips on how to advocate at school and at work, where to find help and support, navigate health insurance, and work with a team of medical experts.

The goal of our “Ask the Expert” podcast series is to share the latest research and information on rare neuroimmune disorders and provide an avenue for individuals diagnosed with these disorders and their family members to ask questions to experts who specialize in these disorders. The podcasts are moderated based on questions submitted by our community. We would like to hear from you. If there are topics that you would like us to address in our podcasts, you can share your thoughts by sending an email to info@wearesrna.org and please use SRNA Podcast in the subject.

Hosted by Dan Cleary, RFR is a comedy podcast that aims to be just that; in rare form. Sex, race, religion, conspiracy, controversy... nothing is off limits! The faint of heart need not apply. Follow us on Instagram & Twitter: @RareFormRadio - subscribe wherever you get your podcasts - Give us a rating & review if you'd be so kind.

Hi, Welcome to the Strong and Rare parenting podcast. My name is Victoria, and I am a special needs momma of two fun loving boys. In this podcast, we will speak about all things Autism, ADHD, and Rare Diseases. This podcast will bring awareness, acceptance, and knowledge on all things we want to learn as parents raising children with special and medical needs. When you join me, I hope that you will walk away with hope and be empowered to be a driver of change for our community. Support this podcast: https://podcasters.spotify.com/pod/show/strongandrareparenting/support

Comment poser le bon diagnostic sur ces nouveau-nés et enfants atteints par des pathologies rares, des malformations de la tête, du cou et des dents ? Vers qui diriger les familles ? Comment parler de ces maladies, les comprendre et les affronter ? Les différents spécialistes de la Filière TETECOU apportent des réponses. Dans « Mots de têtes », le podcast proposé par la Filière de Santé Maladies Rares TETECOU, nous découvrons l’existence de tout un réseau spécialisé dans des pathologies rares, des malformations de la tête, du cou et des dents présentes à la naissance ...

Hosted by HCPLive, the monthly series tackles the intricate details of the 6,000-plus known rare diseases, featuring an expert guest, one disease at a time.

Over 50 years ago, I was born to a family that ostracized me due to my father’s occupation as a criminal. Although my parents were married, had it not been for my grandfather, we would have been put in orphanages due to the dysfunctional nature of my family. I still have memories of the neglect and abandonment that I experienced.

Unapologetically femme leftist agitprop created by comedian Rara Imler. New episodes weekly with full-length streams and bonus content on the Patreon.

O podcast Peças Raras foi criado em 2006 pelo professor e radialista Marcelo Abud. Áudios que contam a história do rádio e entrevistas com comunicadores são a base dos episódios. Aqui, vamos publicar alguns conteúdos que valem ser lembrados. Siga na sintonia!

TE BUSCO es la primera serie de Las Raras, un podcast policial en el que la periodista chilena Catalina May busca al hombre que la atropelló hace 20 años. Una coproducción con Podium Podcast. Las Raras somos un podcast documental independiente con un diseño de sonido único. Contamos Historias de Libertad. Usamos paisajes sonoros y música original. Hablamos de feminismos, medioambiente, derechos humanos, movimientos sociales y más. Encuentra nuestras primeras cinco temporadas en todas las plataformas de audio y lasraraspodcast.com y en Podium Podcast. Nuestra sexta temporada es un ...

Refined. Aged. Bespoke. The Old Fashioned Podcast brings a refreshing point of view on nerd culture and beyond. Enjoy your weekly dose of witty banter, dry humor & brutal honesty.

Radio Rare is a podcast where we share the stories of those in and around the rare and less common cancer community. Being diagnosed with a rare cancer doesn’t mean you’re alone. Radio Rare will dive into the human stories of the rare cancer experience, the innovation and the advocacy. Addressing the feeling of isolation experienced by so many, we look to create a close community of those affected by rare and less common cancers. Produced by Rare Cancers Australia

Techniq and NightHawkPlayz are your guides for everything comics. Join them as they discuss the latest and greatest from Marvel and DC.

WE EVALUATE MARKETS AND GEOPOLITICS RELATED TO ENERGY. JOIN US FOR AN EPISODE.

South London's explosive new podcast discussing pressing topics that are prevalent to young people. Rare talks main host Adz brings uncomfortable and controversial discussions to the forefront of society's attention with special guest speakers from all walks of life.Support this show http://supporter.acast.com/raretalks. SUPPORT THE TING YES https://plus.acast.com/s/raretalks. Hosted on Acast. See acast.com/privacy for more information.

Star Wars & Scotch is a podcast hosted by 2 friends (Darkness429 & kmagic101) who are huge fans of a galaxy far, far away and who also happen to enjoy a nice glass of scotch. Join the community and the conversation and May The Force Be With You....Always!

Welcome to the Rare Cuts Media Society! A Book Club Style show where we dive into Movies, TV, Books, Music, and more. Each month one of us will choose a new piece of media to dive into and discuss. Make sure you watch, listen, and read along with us each month so you will be ready for our discussion. Warning: There will be Spoilers!

Rare Disease Advisor's Rare Care Podcast features exclusive interviews with experts and stakeholders from the rare disease community.

Imagine the excitement of becoming a new parent and then within hours finding out your child has a serious developmental disorder. That is exactly where Sanath Kumar Ramesh found himself in the summer of 2018. One year later, on his son’s first birthday, they found out that their son, Raghav, had an extremely rare mutation of the GPX4 gene. At the time, doctors told them that Raghav may be the only one on the planet with this genetic variant who had lived beyond one month of life. The prognosis is completely unknown. They were alone. They were scared. And then they went into action. And now ...

Welcome to Peliculas With The Bros! Your hosts, Adrian and Ivan , will guide you through a magical journey of movie and television as they discuss and dissect a new film or tv show every week. They also discuss the latest movies, tv and pop culture happenings.