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  • Living with XLH: Parenting a child with a rare disease

    Living with XLH: Parenting a child with a rare disease
    2024/11/23

    This week, XLH Australia President Sandy Bevc and XLH Australia Vice President Naomi Ford speak with their mothers about their experiences parenting a child with a rare condition.

    Topics discussed:

    1. The journey to diagnosis
    2. Parenting a child with a rare disease
    3. Navigating healthcare and advocacy

    Links mentioned in this episode: www.xlhaustralia.com

    This podcast is hosted by ZenCast.fm
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    38 分
  • Living with XLH: Experiences from XLH India

    Living with XLH: Experiences from XLH India
    2024/10/21

    This week, XLH Australia President Sandy Bevc and Vice President Naomi Ford are joined by Prakalp Sudhakar who is the founder and chair of XLH India.

    Topics discussed:

    1. XLH journey as a spontaneous case
    2. Living healthy
    3. XLH India

    Links mentioned in this episode:

    • http://xlhaustralia.com
    • http://xlhindia.org

    This podcast is hosted by ZenCast.fm
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    19 分